I have fibromyalgia, and can fully empathize with what you’ve been experiencing since there are so many similar symptoms. After a flare that required four shots of morphine, I was given some excellent advice: to treat self care like it’s a job. Every time I need to lie down for 30 minutes (which always helps), I remember that I need to do this so that I can be engaged with everything else going on in my life. To not think about it as being indulgent or lazy, but rather like putting fuel in my car.
Also: this is a terrible time of year, arguably the worst. The snow is no longer charming, it’s annoying to have to put boots and puffy coats on, the cozy togetherness of the holidays is over, and the school year feels endless. I think the absolute BEST way to manage it all is with connection. Getting together with people who love and know you. And with people who will make you laugh and remind you that we are all part of this together ❤️❤️❤️
I had back surgery in August and lots of complications due to 2 autoimmune diseases. I just started PT this week and although my body is weak I am too hopeful. I turned 50 this year and it has been the hardest year of my life lots of dark dark moments that are easy to gloss over with the hope I feel now. Those dark moments were the worst and continue to teach me so much. Mostly learning the hope doesn't block out the dark or vice versa just saddles up there next to it to say hey together we are your lived experience.
So sorry to hear about your experience with Long Covid. Wishing you lots of hope and healing in 2024. Thank you for sharing helps me feel less alone. Such a gift.
When I was a 35yo mother of 2 young kids, I ruptured my appendix and, 2 surgeries later, ended up with a surprise diagnosis of endometriosis which led to a plunge into medically induced menopause to treat the pain. I had 3 hours/day when my kids were in preschool and I spent all of it on my couch by the window. I was fascinated by how busy all my neighbors were, driving back and forth all day, but found true comfort in watching the spiders spin webs. It was my very own Charlotte’s Web season and, while there was lots I couldn’t do, I reveled in being truly present in the moment.
May you recover to your whole self quickly and may the journey bring you some joy along the way.
Wow, Christine! I didn't realize (I must have missed something in previous posts) that you have long-covid. It sounds daunting to deal with, and yet, here you are, being positive and even writing this deeply meaningful post about keeping going, even if you don't feel up to it. I'm rooting for you to make a full recovery. I don't live far away, so if I can do anything, please let me know! Best to you in healing!
Oh Christine!! I’m so sorry to hear about the crap you’ve been going through but I’m also glad to hear you’re on the road to recovery. ❤️🩹 for me, exhaustion shows up in my brain... all the frazzle that takes over, all the to dos that haven’t been checked off yet, and it weighs heavily on my mind when I can’t get to it (which happens a lot). But I try to stay balanced -- lots of breaks, yoga, hugging my dog, seeing friends, and loved ones.
Take care of you. I'm sorry that you are struggling at the moment. It is very frustrating to watch others "do" when you can't. Through my fatigue I am learning to love and respect my body as I am. I am reaching new levels of self love and self kindness. I have to trust that this is setting me up for a much better future. I'm 57 and I think age does change recovery too. Lots of love x
“I’m in the midst of a season of healing — and healing often takes longer than we realize.” Amen to this... and also the non-linear and often unanticipated paths of healing. She comes in so many unexpected ways—for me, I especially was humbled to find that healing can occur even when my body isn’t cured. ❤️
Christine, I’m so sorry to hear you are still struggling. Going to the mobile sauna at Lee St. beach or Temperance is getting me through the winter and everything else! Ping me if you’d ever like to come. Pam ❤️
I have fibromyalgia, and can fully empathize with what you’ve been experiencing since there are so many similar symptoms. After a flare that required four shots of morphine, I was given some excellent advice: to treat self care like it’s a job. Every time I need to lie down for 30 minutes (which always helps), I remember that I need to do this so that I can be engaged with everything else going on in my life. To not think about it as being indulgent or lazy, but rather like putting fuel in my car.
Also: this is a terrible time of year, arguably the worst. The snow is no longer charming, it’s annoying to have to put boots and puffy coats on, the cozy togetherness of the holidays is over, and the school year feels endless. I think the absolute BEST way to manage it all is with connection. Getting together with people who love and know you. And with people who will make you laugh and remind you that we are all part of this together ❤️❤️❤️
I had back surgery in August and lots of complications due to 2 autoimmune diseases. I just started PT this week and although my body is weak I am too hopeful. I turned 50 this year and it has been the hardest year of my life lots of dark dark moments that are easy to gloss over with the hope I feel now. Those dark moments were the worst and continue to teach me so much. Mostly learning the hope doesn't block out the dark or vice versa just saddles up there next to it to say hey together we are your lived experience.
So sorry to hear about your experience with Long Covid. Wishing you lots of hope and healing in 2024. Thank you for sharing helps me feel less alone. Such a gift.
When I was a 35yo mother of 2 young kids, I ruptured my appendix and, 2 surgeries later, ended up with a surprise diagnosis of endometriosis which led to a plunge into medically induced menopause to treat the pain. I had 3 hours/day when my kids were in preschool and I spent all of it on my couch by the window. I was fascinated by how busy all my neighbors were, driving back and forth all day, but found true comfort in watching the spiders spin webs. It was my very own Charlotte’s Web season and, while there was lots I couldn’t do, I reveled in being truly present in the moment.
May you recover to your whole self quickly and may the journey bring you some joy along the way.
Wow, Christine! I didn't realize (I must have missed something in previous posts) that you have long-covid. It sounds daunting to deal with, and yet, here you are, being positive and even writing this deeply meaningful post about keeping going, even if you don't feel up to it. I'm rooting for you to make a full recovery. I don't live far away, so if I can do anything, please let me know! Best to you in healing!
Oh Christine!! I’m so sorry to hear about the crap you’ve been going through but I’m also glad to hear you’re on the road to recovery. ❤️🩹 for me, exhaustion shows up in my brain... all the frazzle that takes over, all the to dos that haven’t been checked off yet, and it weighs heavily on my mind when I can’t get to it (which happens a lot). But I try to stay balanced -- lots of breaks, yoga, hugging my dog, seeing friends, and loved ones.
Take care of you. I'm sorry that you are struggling at the moment. It is very frustrating to watch others "do" when you can't. Through my fatigue I am learning to love and respect my body as I am. I am reaching new levels of self love and self kindness. I have to trust that this is setting me up for a much better future. I'm 57 and I think age does change recovery too. Lots of love x
“I’m in the midst of a season of healing — and healing often takes longer than we realize.” Amen to this... and also the non-linear and often unanticipated paths of healing. She comes in so many unexpected ways—for me, I especially was humbled to find that healing can occur even when my body isn’t cured. ❤️
Christine, I’m so sorry to hear you are still struggling. Going to the mobile sauna at Lee St. beach or Temperance is getting me through the winter and everything else! Ping me if you’d ever like to come. Pam ❤️